Day #3

There isn't much new to report and I don't think there will be much more all day.  The thyroid test came back normal which surprised me - both Matt and I have thyroid issues and it is common in people with Down Syndrome.  The salts were low which I don't totally understand what that means.  He is off oxygen and his numbers are the same as before the oxygen so we would like to see him put back on it but the doctors and nurses think he is fine.

Two doctors (today's pediatrician and today's cardiologist) mentioned surgery but did not commit to a time frame. I hear from a couple of nurses in the family that they like to wait until he is at least 10 pounds.  We estimate that will be a couple of months but we just don't know when/what will happen.  I think that is the hardest part for me. When will surgery be? What will happen? The cardiologist that we originally saw said it is relatively a pretty easy surgery, but there are always risks. He is so young and my baby.


We are basically playing the "wait and see" game.  I don't anticipate seeing anymore doctors today. I'll update the blog if anything new develops.